Cystic Fibrosis Confessions

A place for CFers to confess, vent, share thoughts, and understand one another and ourselves.


Confess Here  


“I feel neglected.”

-your-cunting-daughter


“Doing my vest while I am on my period is the worst thing ever.”

-Anonymous



“What does spoonie mean? Where does it come from ?”

-Anonymous

——-

It is in regards to the ‘Spoon Theory’ by Christine Miserandino. It is to do with people living with a chronic illness that may be hard to see on the outside. Have a look at it; it’s quite interesting:

http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/


“I have a brother and sister with cf and sometimes I just pray that they will die from something other than cf, because I don’t want to hear people say they “lost their battle” because they didn’t. They win a little more everyday they are here.”

-Anonymous



“To the anon wanting a tattoo: My mom has a bracelet-type tattoo that says “Breathe Believe” and has a butterfly made out of a purple ribbon.”

-epic-knee-highs


“I really hate people with overly obvious CF-related tattoos. Like giant “JUST BREATHE” on their arm. To me it comes across that they’re bragging that they have it and it fucks me off to no extent.”

-Anonymous



“The worst thing about CF for me is the fact that my husband and I have been trying to get pregnant for over 3 years now and I cant…. I know the doctors say it COULD happen but I don’t think it ever will….”

-Anonymous


“For the anon about the tattoo! I got a rose and “65 Roses” written underneath it. And the rose has a purple tint to it :) you could do something like that.”

-Anonymous



“i just turned 19 the end of last month and my insurance has gone, so I’ll have to pay for all my medications out of pocket, or get it through college. Both are unsavory options, and I don’t want my parents to have to pay for everything… I really would like to move out and declare myself an independant, but that’ll cost even more money. I’m at a bit of a loss what to do right now… getting older sucks. And so does CF. :C”

-Anonymous

“To the person about the pfts. My doctors told me it really just depends on you. Some people are 100 some are like 60. Whatever number your at your healthiest is your avg. Nobody is the same:)”

-Anonymous