Cystic Fibrosis Confessions
A place for CFers to confess, vent, share thoughts, and understand one another and ourselves.
“I really hope that when I die people that never talked to me/I didn’t care about suddenly decides to become my best friend and talk about how great I was. I mean, where the fuck where you when I was alive?! Asshole.”
-Anonymous
“I’m 5 years post transplant, and sometimes I feel like CFers shun me/don’t pay attention to me just because I’m not in the same shoes as them. I’ve been there before too, you know? And when I get sick as post transplant, it’s going to be a lot worse than being sick with CF. I know it will be, because both my brother and best friend passed away after their transplant and they were sicker than ever before.”
-Anonymous
“I won three awards in the past week and each time they were announced they announced I had cf. I wish they didn’t because I don’t want people to think I’m getting it because of pity.”
“I feel neglected.”
“What does spoonie mean? Where does it come from ?”
-Anonymous
——-
It is in regards to the ‘Spoon Theory’ by Christine Miserandino. It is to do with people living with a chronic illness that may be hard to see on the outside. Have a look at it; it’s quite interesting:
http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/
“To the anon wanting a tattoo: My mom has a bracelet-type tattoo that says “Breathe Believe” and has a butterfly made out of a purple ribbon.”
“The worst thing about CF for me is the fact that my husband and I have been trying to get pregnant for over 3 years now and I cant…. I know the doctors say it COULD happen but I don’t think it ever will….”
-Anonymous
